Category Musing
Finally Lighting The Fire
Well howdy. It’s been a while, huh. The last time we talked, I was feeling a bit down. Under the weather. Beat up, broken, busted. I kept my head up, but it was tough. Well, good news. I’m back. And I have some exciting / awesome things to share. MS Ride I think I mentioned […]
6 Mother Effing Months Later
6 months since transplant. 11 months since diagnosis. What. The. Eff. God effing damn it. Am I really still here? “Is this going to be for forever?” I’ve been doing a lot of reflecting lately. I mean, other than reading, watching TV, and playing video games. I’ve had a hard time finding things to say. […]
Cancer is a fucking Thief
Cancer sucks. For real, guys. It’s funny that almost a year after my diagnosis, still, the most apt thing anyone has said since learning I got diagnosed has been “Man…that sucks.” I mean, what else do you say, really? Apologizing is kind of silly – it’s nobody’s fault. There are a million reasons why cancer […]
Day 100 Update, Expanding my cooking palette, What’s Next
Howdy folks! So, as my facebook followers know, I’m officially passed the Day 100 milestone. While growing research is showing that this milestone is somewhat less important than previously thought, it’s a Big Deal(tm) nonetheless. The main things: CMV Reactivation One of the major concerns post-transplant is a virus called cytomegalovirus. Something like 80% of […]
Catheter out, Day 100 party, Good Counts, and more!
First of all, I hope that everyone reading this that lives in the North East made it through Snowpocalypse Nemo ok. Where I’m at, it was fairly benign. No power loss, no real problems of any kind, and probably about 10″ or so of total accumulation. Nothing really to have worried about. I know that […]
84
Got a short one here today, but I figured it’s been long enough since the last update that people are curious with what’s going on with me. Down to 2 For the last 2 weeks, I’ve only had to go into the city twice a week, instead of three times a week. So that’s made […]
Out of the pan, Into the fire
So it’s been a while, huh? I keep telling myself that “today” is the day I write an update on the blog. And then I’m downstairs, watching TV with whoever is watching me, and the 2 sets of stairs between my laptop and I might as well be infinity distance away. I blame the pills. […]
Movin’ On Up!
So, after having my white blood cell count hover around 0.2-0.3 for a few weeks, Thursday, we got a little bump. It bumped up to 0.5. Nice, but nothing great. Then Friday, it hopped up to 0.9. Now we’re getting somewhere. Saturday, it jumped all the way up to 1.4. Today? 2.0. Whaaaaaaat. Go baby […]
THERE CAN ONLY BE ONE….and…some left overs…but whatever those don’t count
Ok, so, since I haven’t been able to update my blog nearly as much as I had hoped, this short and quick bit of positive news needs some explaining. So, after nausea-town, I actually started to feel ok for a few days. And then, not. I spiked a 39.5 C fever (~103 F) that basically […]
First comes prep. Then comes chemo. Then comes Transplant. Then comes nausea. OH SO MUCH NAUSEA
Ok, so we’ve gone over the chemo. I think I forgot to mention that the thiotepa regime that I got has also wildly discolored my skin, and given me all kinds of weird marks everywhere. So that’s fun. My doctor said it should go away, but it’ll likely take several months for the dead skin to […]
Eff Leukemia 