Author Archives: Eff Leukemia

Catheter out, Day 100 party, Good Counts, and more!

First of all, I hope that everyone reading this that lives in the North East made it through Snowpocalypse Nemo ok. Where I’m at, it was fairly benign. No power loss, no real problems of any kind, and probably about 10″ or so of total accumulation. Nothing really to have worried about. I know that […]

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Got a short one here today, but I figured it’s been long enough since the last update that people are curious with what’s going on with me. Down to 2 For the last 2 weeks, I’ve only had to go into the city twice a week, instead of three times a week. So that’s made […]

Out of the pan, Into the fire

So it’s been a while, huh? I keep telling myself that “today” is the day I write an update on the blog. And then I’m downstairs, watching TV with whoever is watching me, and the 2 sets of stairs between my laptop and I might as well be infinity distance away. I blame the pills. […]

Movin’ On Up!

So, after having my white blood cell count hover around 0.2-0.3 for a few weeks, Thursday, we got a little bump. It bumped up to 0.5. Nice, but nothing great. Then Friday, it hopped up to 0.9. Now we’re getting somewhere. Saturday, it jumped all the way up to 1.4. Today? 2.0. Whaaaaaaat. Go baby […]

THERE CAN ONLY BE ONE….and…some left overs…but whatever those don’t count

Ok, so, since I haven’t been able to update my blog nearly as much as I had hoped, this short and quick bit of positive news needs some explaining. So, after nausea-town, I actually started to feel ok for a few days. And then, not. I spiked a 39.5 C fever (~103 F) that basically […]

Do I ever have things to be thankful for.

Well, first, Happy Turkey Day to my American readers. May it be filled turkey and potatoes and stuffing and cranberry sauce and all that. I’ve never been a big fan of  Thanksgiving dinner, in fact. I’m gonna start this post by saying that every Thanksgiving, when people say “say the things you are thankful for”, […]

First comes prep. Then comes chemo. Then comes Transplant. Then comes nausea. OH SO MUCH NAUSEA

Ok, so we’ve gone over the chemo. I think I forgot to mention that the thiotepa regime that I got has also wildly discolored my skin, and given me all kinds of weird marks everywhere. So that’s fun. My doctor said it should go away, but it’ll likely take several months for the dead skin to […]

Aforementioned Embarassing and Funny Stories to Tell

So, we’ll start with two stories. I think I have the energy to tell them both..but better not to dawdle on idle preamble. DISCLAIMER: Both of these stories are gross and/or involve discussion of poop, butts, balls, and other potentially obscene things. Do not read this post if you expect or desire clean humor. It’s […]

And So It Begins…began?

I meant to publish this post after getting my Hiccman cather placed. Then, I intended to post it after I woke up the next day. Then I wanted to post it…and things kept moving it back and back and back. Well, let’s get back on Track, shall we? I’ll start from the beginning. Hiccman Catheter Placement […]

Scary Stuff Un-Related to Halloween

Right, so, I mentioned scary, heavy topics to discuss. Well, time to discuss them. But first, for those of you reading this from the East coast, I hope that everybody is safe. So far, I’ve dropped power for about 10 minutes, and lost internet for another 20 minutes or so. All told, I’m getting off […]