Category Reaction

What Can You Do To Help

Throughout this whole process, all my friends, family, coworkers, associates – everyone has been wonderful. When the discussion of bone marrow came up, I can’t even count the number of people that have offered to come in and get tested, to see if we’re a match. For each and every offer, I am unbelievably touched. […]

Peripherally Inserted Central Catheter (PICC Line)

So, some people have asked me about my PICC line, and I meant to write about the experience, but a few people have contacted me about their own PICC line being placed. So, I figured I’d speed up writing about it a bit. Should be a fairly short post. *Warning*: If you’re extremely squeemish, stay away. […]

Good News Everyone!

Welcome back, I hope everyone had a wonderful 4th, filled with family, friends, fireworks and food. Let’s get right to it, shall we? Updates Today was my follow up in-clinic visit to Dr. Roboz. We got my blood drawn, numbers done up, and then we talked about the initial results of my donor search (still […]

I’ll Get There With A Little Help From My Friends

To everyone reading this; Thank you. Seriously, from the bottom of my heart, thank you. Since my diagnosis, I have had such an outpouring of love, offers of help, visits, emails, texts, facebook messages, letters, gift cards, cookies, baked goods, gchats….everything…that I just can’t even begin to express it. I’m getting more choked up now, […]

Slight Chance of Bone Pain

For the last week or so, I’ve been sitting around, waiting for my counts to come up, so I can be discharged. The counts in particular that we care about: Hemoglobin A measure of the overall ability of your red blood cells to get oxygen to your various body parts. Mine has been hovering around […]

There Will Be Blood

So while I sit here, waiting for my numbers to return, my platelet count is just nose diving. I get transfusions regularly, but apparently, they haven’t been super clear with some of the potential side effects. Most of them are pretty obvious and readily apparently. For instance – you clot ridiculously slowly. I pulled a […]

Sixty Percent

It’s a difficult thing to hear that your chances of a 5 year remission are worse than a coin toss. When everyone around you has been so positive, the inner mathematician keeps whispering “those aren’t very good odds”. Granted, I’ve bet on worse odds. But still. What am I talking about? Well, just about all […]

Literally the Most Embarrassing Thing That’s Ever Happened To Me

Disclaimer: Family members. I love that you guys have been following my blog, and that you guys have enjoyed the posts, and I truly do appreciate all the love and support. This post…you may want to skip. I can’t tell you why you want to skip it without basically giving you the whole story, and […]

What to Expect When You’re Ex….Diagnosed

When I got diagnosed, my mind blanked. I went to my Happy Gilmore Happy Place for a little while. Only not the actual happy place – the distorted Shooter McGavin version. I had no idea what to expect, no idea what came next, no idea of survival rates, nothing. So this post, my idea is […]

The Phone Call

The phone rings. I don’t recognize the number, but the area code is right. I answer. “Hello?” “Hi Mr. L****…it’s Doctor W***. I just wanted to tell you…I took a look, and it’s definitely Leukemia.” “…..” “I went ahead and called a doctor in the city, her name is Gail Roboz. I want you to […]