Tag Archives: leukemia

New Readers start here

New Readers I have a feeling that many of you have found your way here from the column on Cycling Illustrated, from a TNT email, or other newsletter / link. My blog is (aside from one post) arranged in reverse dated order, so it might be a little difficult to find the stories that make […]

Baby Fights

I’m back! Finally got to meet Dr. Barker, the stem cell specialist. She was absolutely awesome, and I loved her. She gave me a lot of info, and made me feel a lot more comfortable with the idea of stem cell. I’m still ┬ánot decided, but I’m feeling a lot better about things. The Nitty […]

Dreadful Hope

It’s been a while, hasn’t it? Well, I figured I’d stop by and drop some updates out there. Hospital Stay The last hospital stay was a rough one. First 2 days were rough because I could barely talk, couldn’t swallow, barely ate, and was just generally uncomfortable. Luckily, the antibiotics cleared up the fever and […]

Dilaudid

She re-enters the room, Relief in her hand. A steady snare drum beats in my temple. A bass pedal, matched to my heart, throbs in my hips. My jaw does its own thing, oblivious to the rythm of pain elsewhere in my body. I watch as she connects the syringe to my IV line, and […]

Updates, Tears, and Other Annoyances

Howdy folks! I realize it’s been a while since I updated the blog, but that all changes, because guess what? This is a blog update! Numbers, Tests, Neutropenia, etc. I went into Presby yesterday for some routine stuff. Blood work, updates to my test statuses, and transfusions if I needed them. So, here they are: […]

It’s Story Time

As you can probably imagine, I’ve had a whole lot of time to sit around and think. A lot of time to have ideas kind of stew and gestate in my brain. Some positive, some negative, some neutral. But today, I want to share about my journey of the last few years. I think it’ll […]

Soooo….when do I get to wake up?

Hey, yeah, so, this has been a pretty fun run. A bit long, for a dream, I think, but I’m about ready to wake up and get on with my life. Can someone out there pinch me, maybe? Did I forget to set an alarm clock or something?   No, really though.   More seriously, […]

Good News Everyone!

Welcome back, I hope everyone had a wonderful 4th, filled with family, friends, fireworks and food. Let’s get right to it, shall we? Updates Today was my follow up in-clinic visit to Dr. Roboz. We got my blood drawn, numbers done up, and then we talked about the initial results of my donor search (still […]

There Will Be Blood

So while I sit here, waiting for my numbers to return, my platelet count is just nose diving. I get transfusions regularly, but apparently, they haven’t been super clear with some of the potential side effects. Most of them are pretty obvious and readily apparently. For instance – you clot ridiculously slowly. I pulled a […]

Sixty Percent

It’s a difficult thing to hear that your chances of a 5 year remission are worse than a coin toss. When everyone around you has been so positive, the inner mathematician keeps whispering “those aren’t very good odds”. Granted, I’ve bet on worse odds. But still. What am I talking about? Well, just about all […]