Throughout this whole process, all my friends, family, coworkers, associates – everyone has been wonderful. When the discussion of bone marrow came up, I can’t even count the number of people that have offered to come in and get tested, to see if we’re a match. For each and every offer, I am unbelievably touched. […]
So, some people have asked me about my PICC line, and I meant to write about the experience, but a few people have contacted me about their own PICC line being placed. So, I figured I’d speed up writing about it a bit. Should be a fairly short post. *Warning*: If you’re extremely squeemish, stay away. […]
So I’ve been home for nearing a week now, and I’m feeling pretty good. I managed to get my favorite burger on the planet, I have plans for the best hot dogs in the city, and I’m going to see a horrible, but most likely hilarious movie tonight (Ted). However, as I relax and kind […]
Welcome back, I hope everyone had a wonderful 4th, filled with family, friends, fireworks and food. Let’s get right to it, shall we? Updates Today was my follow up in-clinic visit to Dr. Roboz. We got my blood drawn, numbers done up, and then we talked about the initial results of my donor search (still […]
Last night I slept in a completely still bed for the first time in almost exactly a month. My whole life, I’ve dealt with a very stubborn brain. I get in bed, exhausted. Then, I sit there for a bare minimum of an hour, waiting to fall asleep. I’ve tried everything. Working out helps reduce […]
To everyone reading this; Thank you. Seriously, from the bottom of my heart, thank you. Since my diagnosis, I have had such an outpouring of love, offers of help, visits, emails, texts, facebook messages, letters, gift cards, cookies, baked goods, gchats….everything…that I just can’t even begin to express it. I’m getting more choked up now, […]
For the last week or so, I’ve been sitting around, waiting for my counts to come up, so I can be discharged. The counts in particular that we care about: Hemoglobin A measure of the overall ability of your red blood cells to get oxygen to your various body parts. Mine has been hovering around […]
So I haven’t posted in a few days…and mainly it’s because I’m going a little stir crazy in here. Nothing major to report, really. But, I figured I’d update everyone. Projected Release Date: The beginning prediction was anywhere from Wednesday the 27th, to Wednesday July 4th. That’s still in play, but now I have 2 […]
So while I sit here, waiting for my numbers to return, my platelet count is just nose diving. I get transfusions regularly, but apparently, they haven’t been super clear with some of the potential side effects. Most of them are pretty obvious and readily apparently. For instance – you clot ridiculously slowly. I pulled a […]
It’s a difficult thing to hear that your chances of a 5 year remission are worse than a coin toss. When everyone around you has been so positive, the inner mathematician keeps whispering “those aren’t very good odds”. Granted, I’ve bet on worse odds. But still. What am I talking about? Well, just about all […]
Eff Leukemia 